Building Bridges: Patient Advocacy Groups Can Be Vital Partners in Clinical Research Trials

Patient advocacy is vital for advancement in managing disease. We met with Chandrabali Ghose-Paul, Chief Scientific Officer, Emily’s Entourage and Gary Joyner, Chairman Emeritus, Board of Directors, Primary Ciliary Dyskinesia (PCD) Foundation to discuss the role of patient advocacy groups in clinical research. In this webinar, we discuss:

  • Bridging the gap between research and patients
  • Adding credibility to research studies
  • Boosting patient outlook
  • Supporting patient advocacy as individuals, groups and sponsors

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