
Webinar
Building Bridges: Patient Advocacy Groups Can Be Vital Partners in Clinical Research Trials
Patient advocacy is vital for advancement in managing disease. We met with Chandrabali Ghose-Paul, Chief Scientific Officer, Emily’s Entourage and Gary Joyner, Chairman Emeritus, Board of Directors, Primary Ciliary Dyskinesia (PCD) Foundation to discuss the role of patient advocacy groups in clinical research. In this webinar, we discuss building the gap between research and patients and how to support patient advocacy in our community.